Since the 2nd week of January, I have been going every two weeks for an infusion which takes about 2 hours. The "side effects" have been minimal. Fatigue for 3-5 days after each infusion. Now, that doesn't mean I'm great the rest of the time. I still have issues from just having one lung, but, that is my new normal.
About 3 weeks ago I did have a scare. I caught a cold. Cancer patients have very bad immune systems to fight of infection. When on Opdivo, no one really knows what it does to your immune system, so I have to be very careful where I go and who I am around.
Anyway, the cold really got me. It was a coincidence that same week I had an appointment with my Lung (Pulmonary Doctor) who was not pleased with my cold and inability to get proper oxygen in my lungs. She immediately gave me a breathing treatment and put me on a strong antibiotic. Luckily, it worked and within several days I was feeling better.
Soooo.....I continue to go every two weeks for Opdivo infusions. I will not have scans until May to check if it is working. That makes me a bit anxious to wait that long but apparently it takes up to 2 months for the Opdivo to put my immune system in "hyper mode." (for lack of a better term). Once it reaches that special level, then it makes my immune system target the cancer cells and kill them. So they want me on it another 2 more months believing that would be sufficient time to see if it is doing what it's supposed to do.
My inspiration EVERYDAY!! My beautiful grandson, Cameron. He's the best <3 <3
And, I listen to this recording my daughter, Maria, made several years ago. It gives me courage and strength to continue on. Click on her name to see it.
Maria Toth
And, I listen to this recording my daughter, Maria, made several years ago. It gives me courage and strength to continue on. Click on her name to see it.
Maria Toth
Hi Jennifer, I have just found and subscribed to your blog. I had my top left lung removed at the end of August 2015. Going for my 6 month video conference on April 7. I have a lot to learn, at this time I am just all confused by what I should and shouldn't eat. Damn whirlwind. Thank-you for this blog, I have much to read. Kathie xoxo
ReplyDelete